'SMA Type 1', Jesy Nelson's Twin Babies Diagnosed With Rare Genetic Condition, 'Will Be Disabled...'

Jesy Nelson is an English singer who rose to fame as a member of the girl group, Little Mix. Earlier, in May 2025, Jessy Nelson and her fiancé, Zion Foster, embraced parenthood for the first time. For the unversed, the couple welcomed two daughters, Ocean Jade and Story Monroe, on May 15, 2025. Amid the good news, the Little Mix alum shared a heartbreaking video on her Instagram related to her 8-month-old twin girls.

Jesy Nelson's twin daughters are diagnosed with a rare genetic condition, SMA Type 1

For the uninitiated, Jesy Nelson’s twin babies were premature and arrived early at just 31 weeks due to a rare pregnancy complication known as twin-to-twin transfusion syndrome. On December 4, 2025, Jesy took to her Instagram handle and shared a disheartening video. In the clip, Jesy revealed that her 8-month-old twin girls are diagnosed with SMA Type 1. In the video, the former Little Mix star recalled being told by the doctors at the Neonatal Intensive Care Unit that her twin babies were different from the other babies, as they were born premature at 31 weeks. She mentioned that for the last few months, the babies had shown little to no movement in their legs. She was quoted as saying:

"After the most gruelling three to four months, and endless appointments, the girls have now been diagnosed with a severe muscular disease called SMA type 1. Essentially, what it does is, over time, it kills the muscles in the body, and if it's not treated in time, your baby's life expectancy will not make it past the age of two."

Jesy Nelson breaks down in tears while sharing that her twin daughters probably would never walk

Further in the video, Jesy became emotional and broke down in tears when she shared that her twin babies probably would never walk. She highlighted that the 8-month-old twin babies probably would never regain their neck strength. She added that currently, the best thing they can do for their babies is to get them proper treatment and hope for the best. She called the SMA Type 1, the 'most severe muscular disease'. She was quoted as saying:

"We were told that they’re probably never gonna be able to walk, they probably will never regain their neck strength, so they will be disabled. And so the best thing we can do right now is to get them treatment and then just hope for the best. It is the most severe muscular disease that a baby can get."

Jesy Nelson shared that her kids would have died if they hadn’t received the treatment

In the video, Jesy shared that she felt grateful as her twin babies received treatment. She mentioned that if they didn’t receive it, the 8-month-old twin daughters would have died. She highlighted how her two daughters went through the treatment. She added that the last three months have been the most heartbreaking time of her life. She was quoted as saying:

"If they don't have it, they will die. In the space of two weeks of getting their diagnosis … I have to put them on breathing machines. The reason I wanted to make this video was that the last three months have honestly been the most heartbreaking time of my life. I literally feel like my whole life has done a 360. I have to be grateful because at the end of the day, they're still here, and that's the main thing, and they’ve had the treatment. And I truly believe that my girls will defy all the odds."

We wish a speedy recovery for the 8-month-old twin daughters, Ocean Jade and Story Monroe.

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